Researchers, patient advocates, health care professionals and community leaders gathered in Columbia, South Carolina to highlight the latest advancements in rare disease research and discuss critical unmet needs in the rare disease community.
Hosted by the South Carolina Rare Disease Advisory Council, the second annual Rare Disease Symposium took place at Segra Park. A virtual attendance option was available to those who could not attend in person.
The symposium included presentations by the National Organization for Rare Disorders, Greenwood Genetic Center and Data Collaboration Center. The founders of two advocacy groups shared their experiences navigating clinical trials and caring for loved ones with rare diseases…
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